Her daughter's life has been turned upside down by terrifying episodes which stop her heart and leave her blue in the face.
Yet Whickham mum Lauren Gair still doesn't know why her toddler is suffering - or how to stop it.
"Bright, beautiful and bubbly", Nova Lane is approaching her second birthday, in March.
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But her mum can't even make firm plans for a party, because Nova's regular seizures mean she could find herself in hospital at any moment. Worse, each episode brings with it the fear of permanent injury, including possible brain damage.
Lauren said: "We are not getting anywhere. She's been admitted to hospital so many times and they do all they can for her but they still can't find anything to put it down to. There's nothing they can do about it because they don't know what they are treating her for yet.
"I just feel like I don't know what to do. I've been doing my best but they just tell us to keep bringing her back if it keeps happening or if she doesn't recover as she normally would, so we've spent hours sitting and waiting in A&E, she's been admitted that many times that everyone on the ward knows her.
"You think that when your child is poorly you'll take them in to see a doctor and the doctor will tell you 'this is what it is, this is how we treat it', but we haven't got that yet, it's all just speculation still."
Lauren will never forget the first time Nova suffered a seizure, in September last year, after the youngster had been poorly with what seemed like an ordinary virus. She and partner Gavin Lane had been relaxing one evening when they suddenly heard screaming from Nova's room.
The 27-year-old said: "I'd never heard anything like it before. We ran upstairs and and she was covered in sick so we took her downstairs to clean her up. She'd fallen asleep on me and then suddenly her eyes pinged open, she looked absolutely terrified, I picked her up and she dropped unconscious in my arms.
"She went completely blue, limp and floppy. I have honestly never felt fear like it, I thought I was losing her."
They spent four days in the Royal Victoria Infirmary and have returned many times over the last five months, undergoing ECGs, blood tests and more.
Doctors are still doing tests, but for now Nova is still without a firm diagnosis. The episodes could be reflex anoxic seizures, a kind of fainting encountered in young children, but as this is usually triggered by injury or fright, it doesn't seem to fit Nova's seemingly unpredictable episodes; while a form of epilepsy is also being considered and her case has been referred to a neurologist.
"They aren't triggered by anything, I've literally just been driving along and she's blacked out, totally blacked out in the car. It's the most terrifying thing to see," Lauren added.
"They happen every week or two and when they happen they tend to come in clusters. They happen even when she's asleep.
"She goes totally unconscious, she goes blue, the doctors have said they believe her heart stops and she stops breathing. It can last anything from a matter of seconds to about a minute.
"It's horrific. My son is only three and he's become terrified of it, he'll run out the room screaming and crying."
One of worst fears is that the problems could be caused by a brain tumour. An MRI is booked to rule out this terrifying possibility - but if it does come back clear the family could face a long wait for answers. A friend has launched a Go Fund Me page to help raise cash for pricey private help which may be able to shed some light more quickly, while Lauren also hopes sharing her story could help her find others in a similar position or someone who can shed light on what's happening.
She said: "All it's going to take is someone to read her story who has had an experience with this who might know what's going on.
"We just want her to get her life back before there's any permanent damage."
Lauren is raising money to fund a private consultation with experts for her daughter at https://www.gofundme.com/f/help-nova-get-her-diagnosis
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