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Liverpool Echo
Liverpool Echo
National
Olivia Williams

Mum 'lost her whole identity' after having surgery she didn't need

A mum said she "lost her whole identity" and lives in chronic pain after having an operation she didn't need.

Donna Johnstone said "it's like being in prison" due to the severity of her pain following the spine operation at The Walton Centre.

Since the surgery, the 48-year-old has missed key life everts like her eldest daughter's graduation, can no longer work at her family business and now rarely leaves the house, reports the Manchester Evening News.

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The mum-of-two, from Wigan, started to have "niggling" arm and neck pain in 2013 and was referred to The Walton Centre by her GP.

A surgeon at the NHS hospital, which specialises in the management of neurological conditions, advised she should have surgery to remove a spinal cord disc in her neck after scans.

But since the operation, she has been left with daily excruciating pain which has prevented her living a normal life, and can only be eased with a strong cocktail of medication.

Following a trial at Manchester Civil Court, a judge ruled that "no reasonable body of neurosurgeons would have offered surgery" at the stage the surgeon at the Walton Centre did.

Donna Johnstone with her husband Neil (Donna Johnstone)

Judge Claire Evens said if Ms Johnstone had been 'appropriately advised,' she would not have progressed to surgery.

She also agreed with two neurological experts that the mum's pain has been "exacerbated" by the surgery and subsequent surgeries since 2013.

The Walton Centre has since been ordered to pay Donna a six-figure compensation settlement following the trial last May.

They have also issued a formal apology to the mum-of-two, admitting they 'let her down.'

Donna believes she developed the original pain following years of manufacturing electrical cables in the family business, Roga Cables.

She had been working full-time up until the day of the operation on August 27, 2013, but since the surgery, Donna has never been able to return to work.

Donna with her niece (Donna Johnstone)

Donna said the compensation payment is 'irrelevant' to her, and will only be used to help manage the chronic pain she faces on a daily basis.

She said she was led to believe the operation was her only treatment option.

Donna said: "I have lost my whole identity as a busy working mum.

"My family have also lost the wife and mother I used to be and now it is they who have to care for me.

"I can't go on holiday as it makes it even harder to manage the pain in different accommodation.

"It's like being trapped in a prison with no prospect of ever being released."

The mum believes the pain she had originally been feeling in her arm and neck was the result of spending around eight hours a day on a machine - where her head was at a "tilt."

She went to see her GP who sent her for some physiotherapy, before she was recommended by her physio to see a neurosurgeon.

An MRI scan revealed a problem with her spinal cord disc in her neck, and Donna was placed under the care of a surgeon at the Walton Centre who recommended the surgery.

Donna said: "I was very reluctant about surgery because my brother had been left paralysed after having an operation."

Her sibling had been left with catastrophic injuries after being struck by a drunk driver in 2005, and now requires 24-hour care from Donna's parents.

She added: "The thought of having surgery in my neck was terrifying. I was very concerned.

"I was working up until the day of the surgery. The pain hadn't stopped me working, it was just troubling me.

"I finished work on that Friday and haven’t been back since."

The operation passed without any issues, but three weeks after the surgery, Donna said she developed a "ridiculous" pain in her neck.

As the pain got "worse" and "worse," she went back for another appointment at the Walton Centre, where the mum claims she was told the pain needed to settle.

She said: "It got to a point where I couldn’t bear the pain I was in.

"They thought I might have developed an infection so I was given months of antibiotics. It wasn’t a nice time. I was very poorly and lost a lot of weight.

"I didn’t improve and the pain was still getting worse.

"I was taking a ridiculous amount of pain medication. I just got to a point where I thought what is the point in all of this."

Donna said she was discharged from the Walton Centre and referred to a private doctor, who informed her she needed to undergo another operation.

Since the original surgery in 2013, the mum has had to have two more operations in 2016 and 2019.

Donna added: "After the final surgery I did actually get to a good position because I was having infusions every 12 weeks for the pain.

"I hadn't taken morphine in months and all my medications were down.

"Then unfortunately came covid and I had to miss a lot of them. I had gone over 12 months without an infusion because of covid.

"Unless you have these injections every three months you have to start the process again so it's been very difficult."

Donna has now been able to restart the three-monthly infusions, which she hopes will start to control the pain again.

But two neurological experts agreed in court that she will most likely suffer with daily pain for the rest of her life.

She said: "If I am having a bad day I won’t do anything.

"If I wake up and think I am having a good day I do a few things but then the day after you pay for it.

"You feel guilty when you’ve worked all your life. I even feel bad that I am not bringing money into the house.

"It just degrades you and strips you of your dignity."

Jodie Miller, a specialist medical negligence solicitor at law firm JMW represented Donna throughout her court proceedings against the Walton Centre.

She said: "Donna’s a very strong lady but her strength has been tested to its limits by this case.

"Despite her poor physical health she dedicated her fight not for herself, but for the other patients she is seeking to protect."

The Walton Centre NHS Foundation Trust told the Manchester Evening News they had nothing further to add, but did confirm the surgeon in question was still working at the hospital.

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