Baby Osian was given very slim odds of surviving when he was born.
There were times that his parents were not sure he would make it. Though still facing some health challenges, he has now been discharged after 14 months in various hospitals. Mum Georgina Jones, who is originally from Swansea, spoke recently about what this moment would mean to her. You can read the full interview with her here.
"Osian seems to love being home, sleeping well, exploring, taking it all in stride," explained Georgina, who gave up work to be there for her son. "His father and I are learning every day. Not having the safety net of the hospital will take a while but we will get there. He is worth all our efforts. We feel so lucky to have him home."
Little Osian stayed on a ventilator for the first 105 days of his life. Georgina, who spent most of her adult life in Cardiff, and now lives in Somerset, said she had so much gratitude to all the "amazing" staff who had supported them through the last 14 months.
"I sometimes think, 'oh, my God, I've been in hospital for over 400 days' and think how have I been able to get through it," his mum previously told WalesOnline. "But you just adapt. Human beings are very good at adapting. The hospital staff are incredible, the nurses are incredible. We've got amazing family that we've been able to help with child care. And you get through. Everyone else is getting on with their life, they go on a holiday, they go and have days out, they have plans, but we, we can't really do that at the moment because our son's in hospitals." You can get more local news and other story updates straight to your inbox by subscribing to our newsletters here.
The adaptations required and supporting Osian's needs at home will not be easy and so the family have set up a GoFundMe page which you can donate to here.
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