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Daily Record
Daily Record
World
James Holt & Steven Rae

'My son asked me if he was going to survive brain tumour - I had to tell him the truth'

A heartbroken mum has spoken of the moment she had to tell her young son whether he would survive being diagnosed with an aggressive tumour.

Arnold Chappin was taken to the doctor by his mum, after the 13-year-old began limping and falling over last year.

He also started having difficulty using his left hand - with parents Ruth and Brett realising something serious was wrong with the youngster.

An MRI scan and other tests revealed that he had a left-sided weakness, was uncoordinated and that his reflexes were not responding properly.

Further tests showed that Arnold, of Bedfordshire, had a "large mass" on his brain, the Manchester Evening News reports.

Last June, the family were told Arnold had developed an aggressive tumour called Brain Stem Glioma. Tragically he was told he may have between six months and a year to live.

Ruth said Arnold began asking questions about whether his hair would fall out, then moved onto whether he would survive. Heartbreakingly, Ruth knew she had to tell him that he would not, making the teen break down in tears.

Ruth said: "It all started about three weeks ago when he started limping on his left side. I noticed he was holding his arm up and that he seemed to be off balance and kept falling over a lot.

"He can be very adventurous and clumsy so at first we just thought it was what he is like as a person. He is always rushing around, climbing up things and falling over.

"Then I really started to see him deteriorate with his balance. He couldn't put his shoes and socks on and was unable to use his left hand. I decided to go straight to the GP and I could see how concerned they were.

"I started to get so worried. The results came through and they said they had found a mass on his brain.

Arnold was given tragic news that he would not survive the brain tumour. (Supplied)

"They sent us to Addenbrooke's in Cambridge and we stayed over last Monday before they did more tests. When we saw the consultant, I knew straight away it was going to be bad news because of the way he was. Then they told us there is nothing they can do, it is a really aggressive tumour and that there is no cure.

"We couldn't believe it. We were shocked and just completely devastated. They told us if he didn't have radiation he has six to nine months to live, but with radiation treatment he could live for up to a year."

The family are looking to relocate to be with loved ones in their original home of Manchester, to have some happy final memories together.

Ruth said: "Once we found out the news and told him he had cancer, he kept acting questions. He knew how serious it was and picked up on that. We tried to be positive in front of him, but it's impossible.

Arnold in hospital with Ivan, right, and his young cousin. (Supplied)

"He kept saying 'am I going to lose my hair?' and 'am I going to be okay?' At the beginning, we could reassure him because we weren't expecting it to be so devastating. As a parent, you are grasping onto any kind of hope.

"I was lying in the hospital bed early in the morning last Friday and asked me, 'am I going to survive mum?' I knew I had to tell him the truth. I looked at him and said no, you're not, and he just broke down crying.

"I told him he wouldn't be on his own and we would be with him every step of the way. I've been blown away by the way he's handled it all.

"You have to just to try and carry on as much as you can. You have to try to forget about it all for a few minutes and pretend it's not really happening.

Arnold and his siblings. (Supplied)

"He is so courageous. I feel like he has taught me how to live life to the fullest. He's so positive and full of energy and enthusiasm for life."

Arnold, who has siblings George, Stella, Henry and Ivan, has been told he will need to use a wheelchair and will eventually stop being able to speak and eat.

A GoFundMe page has been set up to try and raise funds to move to Manchester and also to give Arnold the chance to experience things he has always dreamt of, such as going out for a spin in an Audi R8, zip-lining and meeting his favourite rapper Jordan McCann.

"I want to be able to let him experience as many things as he can, but I don't know how fast he's going to deteriorate," Ruth added. "We want to make sure this is the best year of his life, surrounded by family."

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