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Nottingham Post
Nottingham Post
World
James Holt & Matthew Bunn

Mum's warning to parents as son's pains and rash turn out to be much more serious

A mum has warned other parents to get their children checked after her son's pains and a rash turned out to be much more serious. Mum Jessica had been giving her son Harvey tablets that had been prescribed to help ease his 'agonising' pains.

But, as Manchester Evening News reports, the medication simply did not appear to be working. Harvey, 16, is autistic and lives with mum Jessica, dad, Stuart and four siblings in Middleton, Greater Manchester. After complaining of pain in his back and legs, he was given ibuprofen and paracetamol.

However, his parents instantly knew something was wrong when, just a few days later, he was struggling to walk properly. Jessica said Harvey has always had a high pain threshold, not even shedding a tear when he broke his arm as a young child - but that he was clearly 'in agony.'

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They visited Oldham Hospital's A&E department on February 9, where Jessica said a doctor 'felt his back' and said Harvey's 'muscles were tight'. He was prescribed diazepam and they were sent home.

But the pain he was experiencing had become 'unbearable'. Harvey was not improving and was crying in his room at night. Concerned mum-of-five Jessica, who is a nurse, ran him a warm bath to try and soothe the pain, when she noticed he had a rash on his feet that had spread to his arms.

"As he came out of the bath he noticed a rash coming on his arm and said he had it on his feet. All I could describe it as was speckly, like burst blood vessels where the blood comes to the surface of the skin," Jessica told the Manchester Evening News.

"We had taken him to A&E because it had escalated to the point where he couldn't walk. He was in absolute agony."

Days later, on February 14, after struggling to get hold of a GP, Jessica and Stuart immediately called 111. Paramedics arrived at the house and took Harvey back to A&E at Oldham. He was given morphine to help cope with the extreme pains he was suffering and had turned very pale.

It was at this point a consultant made the decision to take some blood tests from Harvey. His family could never have predicted the devastating news they were about to receive.

"They came back in straight away and told us it was Leukaemia," Jessica said. "It was horrendous. His dad was with him and I was at home. When they phoned me to tell me I remember just screaming. I broke down.

"We couldn't believe it. I couldn't wrap my head around it or process what was going on at first. Then I got my nurse's head on and asked straight away what the next steps were."

Harvey was transferred to Royal Manchester Children's Hospital that same day. Further tests revealed that the teenager had Acute Lymphoblastic Leukaemia (ALL), a type of blood cancer that starts from white blood cells called lymphocytes in the bone marrow. It typically develops quickly over days or weeks and is the most common type of leukaemia to affect children.

(Jessica Cooke)

"In my head, I just knew we were going to get the worst news from those results, which we did. Within the day they were telling us the treatment plan for Harvey," Jessica said.

From February 15, a four-week-long treatment of gruelling and intensive chemotherapy commenced as part of the induction stage, with Harvey now taking three lots of medication each week.

"They are going to essentially blast him with the chemotherapy. It's absolutely horrendous," Jessica added. "He has become nauseous, lethargic, and is hardly eating anything. It totally weakens his whole immune system."

"Harvey's autism shines through but he's very high functioning. Everybody that meets him just calls him amazing. He is usually so bubbly. Even when he came into the hospital he was apologising for being poorly and thanking everyone. He is an amazing son."

Doctors will review how Harvey is responding to the treatment and he will remain bedbound in hospital for weeks. The experience has prompted Jessica to warn other parents about the symptoms.

"Harvey could be stuck there for months, it all just depends on how his body reacts, although because of his age, they do generally have positive outcomes," Jessica added.

The rash on Harvey's hand (Jessica Cooke)

"I've got four other children, so we are juggling that at the moment too, whilst also wanting to be here with Harvey constantly.

"It's an absolute whirlwind, an emotional rollercoaster, but from going through this we know how important it is to not just accept the first answer you're given if you feel something is wrong.

"Especially because children and teenagers have falls or bumps all the time, but it could still be something sinister. My fear is other teenagers could present with these pains and not know they are at risk. They just need a simple blood tests to get the answers and rule it out."

Family friends have since launched a fundraising page to help raise money for the family, with nurse Jessica now taking time off to care for Harvey. Click here to donate.

The Northern Care Alliance, which manages Oldham Hospital, has been approached for comment.

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