Mrs Hinch has described her 'fear and desperation' as she shared her son's rare diagnosis. Taking to social media, the cleaning guru told her 4.1 million Instagram followers that the past ten days have been a 'real-life nightmare'.
The 33-year-old, whose real names is Sophie Hinchliffe, said that her ' darling boy' Ron was taken to A&E after his temperature spiked above 40C. He was quickly put on IV antibiotics but 'nothing' was working and he then 'deteriorated'.
She wrote: "The incredible doctors and nurses started every blood test and scan you can imagine. We paced rooms and corridors for days just waiting for an answer, a result … anything! Seeing Ron this way kicked me with a fear and desperation I’ve never felt in my whole life. What is happening to our son! Please tell me!
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"After a couple of days , more symptoms appeared and results returned. Ron was diagnosed with Kawasaki disease, something I had never heard of before."
Kawasaki disease is a rare, noncontagious disease that only affects around eight in every 100,000 children under the age of five in the UK. This disease causes swelling of the blood vessels throughout the body. It can also affect the blood vessels supplying the heart muscle when not treated early enough.
She added: "This past week has shaken our whole world as a family. I’ve never felt a fear like it. But I need to say THANKYOU to the incredible team at Broomfield hospital, St Marys and Great Ormond street. Thank you for answering our prayers and making our Ronnie better, his little smile says it all so Thank you.
"Please if anyone reading this is a parent/carer of a child with Kawasaki disease Jamie and I would be so so grateful to hear from you and your story. I will do all that I can to help raise awareness of this disease that to this day still has no explained cause."
Ron is now returning home to join his family at their Essex farm.
Kawasaki disease
According to the NHS, a child with Kawasaki disease has a high temperature that lasts for 5 days or longer, and possibly 1 or more of the following symptoms:
- a rash
- swollen glands in the neck
- dry, red cracked lips
- a swollen, bumpy, red tongue (“strawberry tongue”)
- red inside the mouth and at the back of the throat
- swollen and red hands and feet
- red eyes
After a few weeks, and with the correct treatment, the symptoms become less severe, but it can take longer than this in some children.
