A woman who spent 10 years thinking she was unable to have children wants to meet the makers of a miracle drug which has allowed her to start trying for a baby.
Sarah Kay, 36, was diagnosed with Cystic Fibrosis when she was just four years-old with her early life filled with hospital visits, infections and the stark reminder that she would probably die before she turned 30.
But now Sarah, from Crewe, Cheshire, is happily married and undergoing IVF to have a baby thanks to a new drug, Kaftrio, approved for use in the UK last June., reports the Mirror.
Now she wants to meet scientists at Vertex - the pharmaceuticals company which created the lifechanging treatment - and thank them.
Sarah met her now husband, Stephen, in 2016, just as she suffered a total spontaneous pneumothorax where both of her lungs collapsed. After life-saving treatment, she became determined to beat cystic fibrosis and live her life with Stephen to the full.
She said: “When I met my husband everything changed, I wanted to be around for a long time. I started to think about cystic fibrosis and how it could stop me from having a future with him."
Since starting on groundbreaking new drug Kaftrio, Sarah has undergone two rounds of IVF but is also trying for a baby naturally.
She said: "Because of this drug and where my body is at it finally feels like a possibility. I don’t feel like I have cystic fibrosis any more, I can’t remember the last time that I coughed.
"I just can't wait to see Stephen's face when I can finally tell him that I'm pregnant."
Following the NHS bid to secure Kaftrio for patients in the UK, health experts estimate that nine in 10 people living with Cystic Fibrosis will benefit from this life-transforming drug.
NHS chief executive Amanda Pritchard said: “Since NHS staff delivered one of the fastest rollouts of Kaftrio in the world just over a year ago, the lives of thousands of patients with cystic fibrosis have been transformed.
“Innovative treatments like Kaftrio are life-changing for patients and their families, and that is why the NHS has done all it can since we secured the deal for Kaftrio to ensure patients benefit as soon as possible."
Now Sarah is urging people to help her get the hashtag #SarahMeetsVertex trending in an effort to see her dreams become a reality.
Sarah said: “I want to thank these scientists who have made this wonderful treatment for all the people who will come after us, who won’t have to go through what we have been through.”
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