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Liverpool Echo
Liverpool Echo
Sport
Tom Cavilla

Graeme Souness tears up in television message as Liverpool great reveals surprise new challenge

Graeme Souness has revealed he will be swimming the English Channel to raise money for a charity close to his heart.

The former Liverpool midfielder surprised many by announcing his exit from Sky Sports last month, though was back on the screens of the country this morning to explain a challenge he has lined up.

Souness explained the reason behind this mammoth challenge is to support the work of national charity, DEBRA, who offer support to individuals living with Epidemolysis Bullosa (EB).

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A degenerative condition that attacks children's organs and development, EB causes one's skin to become fragile and often results in painful blisters. There is currently no cure for the condition.

"It is the most horrendous disease," Souness told BBC Breakfast. "If you're inflated by it, you must wake up every morning and say 'Why me?' It is a desperate situation, and then the parents have to deal with that - and that's what we're doing."

"I knew nothing about this, I'd never heard of this disease and the vast majority of people out there will know nothing about this disease. Please do a little bit of research and see how nasty and awful this is to sufferers and the impact it has on families. It properly punched me on the nose when I first witnessed a sufferer. You'd' have to be some special human being, if you're to meet Isla or any poor children who are sufferers, not to be moved by it. I plead with anyone who can do a bit for us, because we must bring relief to them."

A meeting with a 14-year-old girl named Isla four years ago that alerted Souness to EB, and the pair have since stayed in touch. Reconnecting with the teenager to discuss how she manages the challenges faced on a day-to-day basis, Souness asked Isla what has been the most difficult part of her treatment to date.

"I had plastic surgery on my hands," she explained. "They basically separated the fingers and straightened them. My fingers are still there, they're just cased in the skin."

Isla added she has bandages on her hands changed three times a week. Asked to rate the pain involved in this process out of ten, she responded: "I'd say 11."

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