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Glasgow Live
Glasgow Live
National
Laura Ferguson

Glasgow woman opens up on living with Tourettes and childhood fear of 'weird kid' label

A Glasgow woman who lives with Tourette's Syndrome is fighting to improve understanding of the condition in order to help remove the stigma for young people.

Tourette's Awareness Month takes place from May 15 to June 15, with charities working to help correct misunderstandings about the condition.

Genna Barnett works with Tourette's Action to help provide support for young people with the condition and to help remove barriers they may face.

Genna was seven years old when she was first diagnosed with Tourette's. Now 31, she described the difficulties she faced coping with her condition as a child and how she fought to suppress the tics associated with the condition.

Speaking to Glasgow Live, she said: "I was diagnosed when I was seven, but it was a two-year long process.

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"I started going to a child psychologist when I was five. I had quite severe tics and I ended up missing a lot of school.

"Between the age of five and seven all the way through to secondary school it was really bad. I spent a lot of time being really embarrassed by it.

"Then when I went to Mearns Castle High School, I forced myself to learn to suppress them. I didn't want to be known as the 'weird kid'."

In recent years, with her diagnosis no longer affecting her as severely, Genna, who works as a data analytics programme manager, has focused on working with Tourette's Action in a bid to give back to the community.

Genna with her family. (supplied)

"All through adulthood it's affected me a lot less, but it's still there and flares up when I get stressed," she explained.

"I spent the majority of my life being really embarrassed by it, and it's only in the past three or four years that I started to own it and became a trustee for Tourette's Action.

"I felt it was the right thing to do - to be more open about it.

"While I do think diversity is more accepted these days, Tourette's is treated quite differently by the public. I don't think it's the same for other neurodiversities like autism or ADHD, which are more understood.

"There's this idea that Tourette;s is all swearing and shouting, but it's far more wide-ranging than that.

"I don't personally have vocal tics. It can minimise the way I've felt about the condition - the frustration of not being in control of your body."

Genna described the view many people have of Tourette's Syndrome as "stereotypical" and said people are often surprised to learn she lives with the condition.

"I do think it's better than it was when I was a child," she said. "But I think that's because people are more accepting and open-minded rather than people actually understanding the condition.

"People do still have a very stereotypical view of Tourettes. A lot of people are often shocked that I have it.

"I got involved in Tourettes Action when I lived in London. I wanted to give something back and feel like I could help support the community.

"I think it's really important that it's people with the condition that are shaping the future of the charity."

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