A Glasgow tot with two bladders and uteri hasn't gone a day without pain since her birth two and half years ago.
Mia Solomiewicz, two, has had three surgeries since she was born, on December 14 2020, to try alleviate the suffering caused by bladder, kidney and bowel issues. She has an ileostomy, high blood pressure and requires to take specialised milk and medications.
Mum, Kinga Chmielewska, and dad, Karol Solomiewicz, are currently feeding their daughter through a syringe and worry that she may never wake up every time they put her to bed.
The couple, who live in Newton Mearns, were delighted when doctors told them that now 39-year-old Kinga was pregnant with twins. But they were later told that their children had a few complications.
The parents were shocked as doctors explained that prior to her being born their daughter had several of her vital organs on the outside of her body.
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Kinga told Glasgow Live: "They told me when I was five months pregnant that there was something wrong.
"Mia survived but my other child did not. They said she would need surgery as soon as she was born.
"She was born with two bladders, two uteri and a stoma.
"She looks like a pregnant child and is still being fed through syringes because she can't swallow properly.
"I'm crying everyday because I don't know what else I can do.
"Sometimes I feel like I want to give up."
Young Mia has undergone three surgeries in just two and a half years to help her cope with her complex and extremely rare condition.
She spent both her first Christmas and birthday lying in a hospital bed as her parents doted on her and hoped she would feel better.
The toddler is still living a life of crippling agony and has never had the opportunity to make friends with those her age as she is unable to join a club or nursery due to her condition.
The parents are desperate for her to experience everything a young child in Glasgow should, but the rough and tumble life of a toddler comes with real risks for Mia.
It has led to the couple limiting the amount of things the two-year-old is allowed to do
The 39-year-old explained: "She doesn't have any life right now, she can't do anything.
"Mia wants to go to the soft play but she can't. Mia loves music and she would love to swim.
"She is very cuddly and would love to hug other kids her age.
"But she isn't allowed to do anything kids her own age does. She sits at home all day.
"Sometimes when we go shopping she gets excited when she sees other kids. We also need to control how much she is walking because it causes so much pain and cramps.
"When she is outside she just wants to run around but after 15 minutes we need to stop her.
"As parents we can't even play with her."
Karol added: "We can't take her out because of the risk of infection. When she asks for something and I have to tell her no, my heart breaks.
"She has been to nursery for one hour in her life and she loved it. But she caught an infection and hasn't been able to return.
"It has been so hard because we are in hospital at least once a week."
Watching their daughter suffer has also taken a toll on both Kinga and Karol's health. Both parents have sacrificed their worklife to ensure that their daughter is cared for.
The loving mum said: "She has gone unconscious a number of times due to the amount of pain she is in.
"Mia hasn't been sleeping or eating and she can get extremely dehydrated. She is vomiting all the time and it is heartbreaking to watch. My husband is registered blind so I also need to help him and it can make me feel really drained because I don't sleep."
Karol added: "I have been prescribed anti-depressant tablets because of everything.
"We were told that Mia had a hernia but they couldn't do anything because her muscles weren't strong enough. However, we were then told that she never had a hernia
"It was later found out that the stoma had infected the inside because it wasn't working. She was close to death."
The family were told by the NHS that they would need to wait a couple of years before they could operate on Mia to try reverse the stoma.
However, they are now raising cash to fly to their native Poland to meet one of the country's top doctors who specialises in complicated cases.
The treatment could cost the couple tens of thousands of pounds but they are willing to do anything for Mia.
Kinga said: "She has a British Passport so the operation isn't free.
"Our best option is to raise the money. It is three steps and we have a consultation on June 5.
"I'm absolutely terrified that we may not be able to afford it.
"This surgery is the last chance for her. I just hope we make it to Poland."
Karol added: "The first step is £15,000 but then we have to pay for flights, accommodation and later scans.
"The person we are seeing is one of the best doctors in Poland and he specialises in complex cases.
"It usually takes a long time to see him but he listened to our story and he booked us in. However, this is just the start for us."
The loving mother and father hope that the operation could completely change their family for the better.
The thought of finally sending Mia to nursery and playing with her outside continues to drive the couple forward.
The Newton Mearns mum said: "My dream is to have a normal life with no pain, no tears.
"I can't remember when I had a full nights sleep.
"I just want to make my daughter better and happy."
A spokesperson for NHS Greater Glasgow and Clyde said: "While we do not discuss individual cases for reasons of patient confidentiality, the medical needs of our patients are central to the treatment we provide, and we will continue to engage with and support Mia and her family wherever possible."
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