A mum has died from a rare disease after colleagues noticed her coughing at work.
Anne Doran was fit and healthy, still going to the gym and enjoying long walks before she was diagnosed with Idiopathic Pulmonary Fibrosis (IPF).
The disease, which affects just 50 in every 100,000 people and has no cure, left her struggling to breathe and bedbound.
Described by friends as inspirational, Anne was diagnosed with IPF in 2014 when she was 58.
The former senior manager at Royal Liverpool Hospital, who worked as a magistrate and school governor despite battling the disease, died in August, 2020.
Her family are now campaigning to raise money for Action for Pulmonary Fibrosis charity.
Anne's daughter, Louise Doran told the Manchester Evening News : “She was going walking, going the gym, you know she was healthy.
"Then this came along and at first, she wasn’t on oxygen and she could still get about.
"She was going into work coughing, and someone picked it up and said to her, 'you better get it checked out', so she did and had a lung biopsy and it was diagnosed as Idiopathic Pulmonary Fibrosis.
“Then she needed to go on oxygen and she could do less, and less and less. In the end, she’d be sat on the sofa, and just lifting her arm up or just moving one space along, the oxygen in her blood was getting lower.
“Even though she was getting oxygen, her lungs couldn’t deal with it because there was scarring to them. It’s so limiting, you can’t talk, you eat less and less.
“You end up being bed-bound and, sadly, from my mum’s experience, once you’re at that stage you probably haven’t got long left."
Currently, there are only two drugs which slow progression of the disease. Limited clinical trials exist as do lung transplants, but they aren’t available to all patients.
Louise added: “They don’t know what caused it. They asked her all of the usual questions - have you worked in a mine, have you kept pigeons, do you smoke? And the answer was no to all of those questions so they couldn’t pinpoint what it was.
“There are quite a few people that have got it and they don’t know what caused it. There’s various groups on Facebook with hints and tips for people who’ve got IPF, so they can try and support each other.
“But there’s people still struggling there now, just as much as my mum was two years ago and there doesn’t seem to have been many changes. Charities are doing research to try to find a cure, which is brilliant but the day-to-day things really could be so much better.
“It’s such a poor quality of life, it’s awful to see.”
