A mum has said she's in a "constant battle" to seep her five-year-old son safe, due to a rare disorder which causes him to crave wall coverings and skirting boards instead of food.
Caitlyn McLaughlins says her son Barry has autism, a speech delay, as well as rare 'eating' disorder called Pica - which means he requires special adaptions to his bedroom as she fears he will choke on something he has eaten.
Caitlyn, who lives in West Dunbartonshire, Scotland, has been pleading with her council to carry out the adaptations as she is currently on "constant alert" when Barry is in his bedroom, the Daily Record reports.
The mum-of-two said: “They’ve wallpapered the walls twice but he’s picked it all off. I asked for a plastic wall coating which they’ve now said needs to be done but haven’t agreed yet to do it.
“He’s eaten the underlay and chews the skirting boards. He also smears up the walls and the carpets and it’s really hard to clean. I am scrubbing it constantly.
"The lino floor and plastic coating on the walls would make it much easier to clean as there would be no fibres. He only sleeps in there now and even then I’m on constant alert, checking on him making sure he’s not choking on something he’s eaten.
"It’s heartbreaking – every time I walk past it it’s a constant reminder that it’s not a room you would want your child to grow up in.”
Caitlyn said it was a “gut punch” to read a report that West Dunbartonshire Health and Social Care Partnership (WDHSCP) is sitting on £6million of reserves while her son’s room awaits vital work.
She added: “It has been a long road. When I heard about the money in the reserves it made me really angry. You still want it to be a wee boys’ room but it isn’t like a child’s room. There’s no dignity in it just now.
“It’s got a bed in it and that’s it. It was even a fight to get the specialist bed and that took two-and-a-half years. He had eight different beds during that time and broke every single one of them.
“It’s been a constant battle. I am not asking for a handout. I just want his room to be safe and if I could afford it myself, I absolutely would pay for it. It’s just not feasible.”
She told how a roll of lino, supplied by the local authority, has been lying in her hall since last summer, with the walls and floor still bare and electrics yet to be completed.
Caitlyn said the council told her work would be carried out to her son’s room once she moved house, which happened in July 2020.
A private contractor had quoted her £12,500 to complete all the work required, but Caitlyn said the council told her that was too expensive to fund.
She said the works appear to have been hit with delay after delay, adding: “For the first few months I was told that Covid was causing the delay but then it was staff being on annual leave.
“I’ve also been passed from pillar to post. I feel like I’m not getting anywhere.”
Beth Culshaw, Chief Officer of WDHSCP said: “We are sorry that this resident is unhappy with the service she has received to date.
“Our commitment is always to improve the lives of people in West Dunbartonshire so we regret that circumstances, including staff absences due to sickness and the Covid-19 pandemic, have caused a delay.
“We will continue to work closely with the family and we are confident that we will be able to provide the adjustments required.”
