Get all your news in one place.
100’s of premium titles.
One app.
Start reading
Daily Mirror
Daily Mirror
World
Kelly-Ann Mills

Baby born with expanding head that won't stop growing due to rare condition

A mum whose daughter's head keeps growing to an abnormal size due to a rare condition has hit back at the cruel trolls who call her names.

Adalgisa Soares Alves fell pregnant with her first child, Graziely, and immediately knew something wasn't quite right as she struggled with intense stomach pain.

Medics told her little Graziely had hydrocephalus, a build-up of fluid on the brain causing pressure and subsequent damage to the skull, with them estimating she would only live for three months in Brazil.

Now, the mum-of-three, 48, is sharing her daughter's daily battle with the condition, which saw her being dubbed a "giant baby" at birth.

She said: “I don't think it's cruel because 'baby' is an affectionate word, but when they call out her 'big head' I feel sad, because then that is just being cruel.

Adalgisa Soares Alve suffered from pain when her baby was in her womb (Jam Press/@adalgisasoaresalves)

“But the important thing is that me, and all our family and friends, love Graziely the way she is."

Adalgisa says nothing could have been done before or immediately after the tot was born and now, she's unable to walk, speak and has recently lost her eyesight.

She said: “Every day I take care of her, bathe her and feed her with all my love.

Adalgisa holding her daughter (Jam Press/@adalgisasoaresalves)

“I'm dedicated to Graziely and it makes me happy to see her well cared for, from me and all of our family.

“Nephews, cousins, aunties and many more family members love to come and see her and care for her.

“I don't work, I just take care of her — I’m happy to take care of her and it is rewarding when I see her smile.

Graziely having a bottle being fed to her (Jam Press Vid/@adalgisasoaresalves)
Her head kept growing to an abnormal size due to a rare condition (Jam Press/@adalgisasoaresalves)

“I never lose hope because I am a woman of great faith and I always put God above everything — I pray a lot every day.”

In a bid to share their daily life, and raise awareness, Adalgisa updates their followers on Instagram with pictures and videos of Graziely.

In one clip, which has racked up over 113,414 views, Graziely is shown having a bottle being fed to her.

The mum-of-three is sharing her daughter's daily battle with the condition (Jam Press/@adalgisasoaresalves)

Adalgisa, who is also mum to Elanny, 28 and Bruna, 26, added: "I always hope that she will live [for] many years.

"She transmits positive energy and I feel a peace that overflows when someone visits her.

“I will always give her the best because she was born from my womb, she was very much loved and desired inside my belly and I will love her until the last day of her life.”

Sign up to read this article
Read news from 100’s of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.